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dc.contributor.authorZnaor, Ariana
dc.contributor.authorFouad, Heba
dc.contributor.authord'Intignano, Fosca Majnoni
dc.contributor.authorHammerich, Asmus
dc.contributor.authorSlama, Slim
dc.contributor.authorPourghazian, Nasim
dc.contributor.authorEser, Sultan
dc.contributor.authorPetersen, Marion Pineros
dc.contributor.authorBray, Freddie
dc.date.accessioned2021-03-15T06:58:48Z
dc.date.available2021-03-15T06:58:48Z
dc.date.issued2020en_US
dc.identifier.issn0020-7136
dc.identifier.issn1097-0215
dc.identifier.urihttps://doi.org/10.1002/ijc.33223
dc.identifier.urihttps://hdl.handle.net/20.500.12462/11196
dc.descriptionEser, Sultan (Balikesir Author)en_US
dc.description.abstractData from population-based cancer registries (PBCR) are critical for planning, monitoring and evaluation of cancer control programs, but are frequently underutilized by key stakeholders. As part of the ongoing partnership of the International Agency for Research on Cancer (IARC) and the WHO Eastern Mediterranean Regional Office (EMRO) in cancer surveillance, we designed a cancer registry survey to assess the level of involvement of PBCR in national cancer control planning across the region. A questionnaire on registry characteristics, their contribution to cancer control and perceived barriers, was sent to 14 countries with operational PBCR. We obtained replies from Bahrain, Egypt, Iraq, Iran, Jordan, Kuwait, Lebanon, Morocco, Oman, Qatar, Saudi Arabia, Tunisia and the United Arab Emirates. We found a high participation of PBCR in cancer control planning (all registries involved, 46% routinely) and the evaluation of screening (92% registries involved, 46% routinely), but a much lower level of participation in palliative care and rehabilitation activities. Specified barriers included poor governance, a lack of awareness by policy makers, insufficient resources and a limited availability of data electronically, including mortality data. Appropriate planning to ensure the sustainability of PBCR (including the employment of permanent staff), increasing training, building research capacity and ensuring an efficient provision of high-quality data to policymakers, were among the proposed solutions. The results of our study reinforce the need for further tailoring of activities in support of cancer registration and enhanced networking among stakeholders, toward improving quality and use of cancer registry data for cancer control in the EMR.en_US
dc.description.sponsorshipCambridge Careers Service Summer Bursary Schemeen_US
dc.language.isoengen_US
dc.publisherWileyen_US
dc.relation.isversionof10.1002/ijc.33223en_US
dc.rightsinfo:eu-repo/semantics/embargoedAccessen_US
dc.subjectCancer Controlen_US
dc.subjectCancer Registriesen_US
dc.subjectEastern Mediterranean Regionen_US
dc.titleUse of cancer data for cancer control in the Eastern Mediterranean Region: Results of a survey among population-based cancer registriesen_US
dc.typearticleen_US
dc.relation.journalInternational Journal of Canceren_US
dc.contributor.departmentTıp Fakültesien_US
dc.contributor.authorID0000-0002-4249-7276en_US
dc.contributor.authorID0000-0003-4427-4540en_US
dc.identifier.volume148en_US
dc.identifier.issue3en_US
dc.identifier.startpage593en_US
dc.identifier.endpage600en_US
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanıen_US


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